Monthly Archives: August 2013

Meeting of the Minds, Revisited

So I met with the liver transplant team yesterday, though it was really just one doctor, the social worker and a care coordinator. It was a productive appointment, but only because I made it so. I think I made my … Continue reading

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Boloby.com

It’s official: You can now access this blog via Boloby.com. I haven’t had a proper URL in about eight or nine years, since the final days of my old band. I probably should have done this earlier, but at least … Continue reading

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Meeting of the Minds

So I’ve got an appointment this Wednesday to see the liver transplant team at Jackson. If you read my surgery story, you’ll recall that it was one of the team’s fellows who told me not to worry about pain management … Continue reading

Posted in Crohn's Disease, General Disease, Liver Transplant, surgery | 1 Comment

Surgery Part 8: No Place Like Home

You gotta be kidding me — this can’t be happening. OK, so maybe it can, but I’m accepting it only with great reluctance. After four days of feeling relatively normal following the paracentesis, my insides were acting up on the morning I was … Continue reading

Posted in Crohn's Disease, General Disease, Primary Sclerosing Cholangitis, surgery | 1 Comment

Surgery Part 7: ‘Just Gas’ My Ass!

“Omigod, omigod, omigod … No … stop!” Yep, that was me again, in a scene similar to the first bed transfer hours after my operation. It was Thursday afternoon, a week and a half later, and I was in the imaging … Continue reading

Posted in General Disease, Primary Sclerosing Cholangitis, surgery | 3 Comments

Surgery Part 6: Ouch, Again

At the very beginning of this story I described waking up on the morning of my surgery: “I was frozen. Stuck. The pain wouldn’t let me move.” That episode lasted about 10 minutes, but it felt like an hour. Well, … Continue reading

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Surgery Part 5: Movin’ On Up? Not Quite

Things were looking good on Saturday. I was told I’d be moving to a proper room later in the day, and the doctors were very happy with the rate of my recovery. They didn’t tell me this, though. I just … Continue reading

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