Category Archives: Primary Sclerosing Cholangitis

HEALTH UPDATE: Good For Now

I spent Wednesday down at the Miami Transplant Institute, where I had a very informative appointment. As always, it was a mix of the good, the bad and the “who knows.” Oh, and a possible “light at the end of my present … Continue reading

Posted in Crohn's Disease, General Disease, Liver Transplant, Primary Sclerosing Cholangitis, surgery | 2 Comments

This Ain’t A Contest

Depending on how charitable I’m feeling, I’m filing this under either “Misplaced Empathy” or “Really Bad Attempts at One-Upping.” The same person who in the past has sent me emails, ostensibly concerned about my health but always managing to talk … Continue reading

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Surgery Part 8: No Place Like Home

You gotta be kidding me — this can’t be happening. OK, so maybe it can, but I’m accepting it only with great reluctance. After four days of feeling relatively normal following the paracentesis, my insides were acting up on the morning I was … Continue reading

Posted in Crohn's Disease, General Disease, Primary Sclerosing Cholangitis, surgery | 1 Comment

Surgery Part 7: ‘Just Gas’ My Ass!

“Omigod, omigod, omigod … No … stop!” Yep, that was me again, in a scene similar to the first bed transfer hours after my operation. It was Thursday afternoon, a week and a half later, and I was in the imaging … Continue reading

Posted in General Disease, Primary Sclerosing Cholangitis, surgery | 3 Comments

Forming

(Note: This is another piece I wrote before my colectomy. It’s long, but that’s because it’s a comprehensive look at the origins and purpose of the Boloby character.)

How I Became An Alter Egomaniac

By Jason Budjinski

Some people cope with chronic illness by relying on others, and I’m no exception. My “other” just happens to be an alter ego I created named Billy Boloby.

The denim-clad rocker types in the front pogoed up and down, drunkenly toasting champagne and splashing it all over the front of the stage. Some got on my white suede shoes, but I didn’t mind. The entire place was electric, and I was too busy feeding off that energy to worry about minor annoyances.

It was Dec. 31, 2003, and my band, Billy Boloby, was headlining the annual New Year’s Eve party at Palm Beach County’s premier alternative nightclub, Respectable Street. As the band’s frontman, I tried to make every performance as engaging as possible — a mix of dancing, pratfalls and general spontaneity.

That’s what Billy Boloby was known for, and Billy Boloby was what I was known for — and known as. People expected to see me fall off the stage and roll around. It was one of Boloby’s more salient characteristics, and something the local press always mentioned when writing about the band.

That was all many years ago.

When the phrase “fall precaution” was most recently written in reference to me, it wasn’t in a newspaper’s A&E section filed under “music.” Rather, it was on a hospital room dry-erase board, under “safety alerts/special needs.” And the name read “Jason Budjinski.” Because at that point, Billy Boloby was gone. Whether he was dead or on life support, I wasn’t sure. I just assumed the worst. Continue reading

Posted in Crohn's Disease, General Disease, Music, Primary Sclerosing Cholangitis | Leave a comment

I’m Back… Where Are You?

OK, so I’ve decided I’m going to really make this blog happen, and I’m gonna start posting more often, starting with a few articles I’ve written lately relating to my most un-excellent medical adventures. I realize for now I’m pretty … Continue reading

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Lots of Words

In December 2012, New Times Broward-Palm Beach published an article I wrote about my situation vis-à-vis being a performer. Originally, the story was going to be a 4,000-word feature, but stuff happened and I ended up rewriting it entirely. Here’s … Continue reading

Posted in Crohn's Disease, General Disease, Liver Transplant, Music, Primary Sclerosing Cholangitis, Uncategorized | Leave a comment