Category Archives: Crohn’s Disease

HEALTH UPDATE: Good For Now

I spent Wednesday down at the Miami Transplant Institute, where I had a very informative appointment. As always, it was a mix of the good, the bad and the “who knows.” Oh, and a possible “light at the end of my present … Continue reading

Posted in Crohn's Disease, General Disease, Liver Transplant, Primary Sclerosing Cholangitis, surgery | 2 Comments

How Are You?

“Please don’t ask me how I am/ I have to lie and say I’m fine.” — The Fastbacks I couldn’t tell what was causing me more discomfort: the urinary catheter, the nasogastric tube or the numerous IVs dangling from my … Continue reading

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This Ain’t A Contest

Depending on how charitable I’m feeling, I’m filing this under either “Misplaced Empathy” or “Really Bad Attempts at One-Upping.” The same person who in the past has sent me emails, ostensibly concerned about my health but always managing to talk … Continue reading

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Meeting of the Minds

So I’ve got an appointment this Wednesday to see the liver transplant team at Jackson. If you read my surgery story, you’ll recall that it was one of the team’s fellows who told me not to worry about pain management … Continue reading

Posted in Crohn's Disease, General Disease, Liver Transplant, surgery | 1 Comment

Surgery Part 8: No Place Like Home

You gotta be kidding me — this can’t be happening. OK, so maybe it can, but I’m accepting it only with great reluctance. After four days of feeling relatively normal following the paracentesis, my insides were acting up on the morning I was … Continue reading

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Surgery Part 5: Movin’ On Up? Not Quite

Things were looking good on Saturday. I was told I’d be moving to a proper room later in the day, and the doctors were very happy with the rate of my recovery. They didn’t tell me this, though. I just … Continue reading

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Surgery Part 4: Eye See You

“Nurrrssse! … Nurrrssse! … Nurrrssse!” I woke up Thursday morning to the sound of silence, finally enjoying having my very own room in ICU.  The door was closed, and I was flipping through channels on the television, something I didn’t have … Continue reading

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Surgery Part 3: Wednesday, Hump Day

Wednesday, so-called “hump day” — the middle of the workweek. At the time, it seemed like I might be making it over the hump. The day started off a bit better than the two previous days. I wasn’t in as … Continue reading

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Surgery Part 2: Ouch — That Hurts!

I was lying on the gurney, awaiting surgery, and then nothing — everything went black. Next thing I knew, I was in the recovery room, surrounded by nurses and other hospital people. They saw my eyes open and asked me … Continue reading

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Surgery Part 1: The Day Before/The Day Of

For years I’ve been battling Crohn’s disease as well as a rare liver disease, and currently am on the liver transplant list. On June 24, 2013, I underwent surgery for a total colectomy, in which my entire colon was removed … Continue reading

Posted in Crohn's Disease, surgery | 1 Comment