Category Archives: Crohn’s Disease

Forming

(Note: This is another piece I wrote before my colectomy. It’s long, but that’s because it’s a comprehensive look at the origins and purpose of the Boloby character.)

How I Became An Alter Egomaniac

By Jason Budjinski

Some people cope with chronic illness by relying on others, and I’m no exception. My “other” just happens to be an alter ego I created named Billy Boloby.

The denim-clad rocker types in the front pogoed up and down, drunkenly toasting champagne and splashing it all over the front of the stage. Some got on my white suede shoes, but I didn’t mind. The entire place was electric, and I was too busy feeding off that energy to worry about minor annoyances.

It was Dec. 31, 2003, and my band, Billy Boloby, was headlining the annual New Year’s Eve party at Palm Beach County’s premier alternative nightclub, Respectable Street. As the band’s frontman, I tried to make every performance as engaging as possible — a mix of dancing, pratfalls and general spontaneity.

That’s what Billy Boloby was known for, and Billy Boloby was what I was known for — and known as. People expected to see me fall off the stage and roll around. It was one of Boloby’s more salient characteristics, and something the local press always mentioned when writing about the band.

That was all many years ago.

When the phrase “fall precaution” was most recently written in reference to me, it wasn’t in a newspaper’s A&E section filed under “music.” Rather, it was on a hospital room dry-erase board, under “safety alerts/special needs.” And the name read “Jason Budjinski.” Because at that point, Billy Boloby was gone. Whether he was dead or on life support, I wasn’t sure. I just assumed the worst. Continue reading

Posted in Crohn's Disease, General Disease, Music, Primary Sclerosing Cholangitis | Leave a comment

Dear Colon…

On Monday, June 24, I’m scheduled to have my entire colon removed. While the official reason is because pre-cancerous growths were discovered (complications of Crohn’s disease), and any potential for cancer can affect my placement on the liver transplant list … Continue reading

Posted in Crohn's Disease, General Disease, Liver Transplant | Tagged , | 3 Comments

I’m Back… Where Are You?

OK, so I’ve decided I’m going to really make this blog happen, and I’m gonna start posting more often, starting with a few articles I’ve written lately relating to my most un-excellent medical adventures. I realize for now I’m pretty … Continue reading

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Lots of Words

In December 2012, New Times Broward-Palm Beach published an article I wrote about my situation vis-à-vis being a performer. Originally, the story was going to be a 4,000-word feature, but stuff happened and I ended up rewriting it entirely. Here’s … Continue reading

Posted in Crohn's Disease, General Disease, Liver Transplant, Music, Primary Sclerosing Cholangitis, Uncategorized | Leave a comment

A Slight Setback

On Feb. 19, I went to Miami to meet with the Jackson Memorial Hospital transplant team Feb. 19 for a follow-up from my initial visit a year ago (March 2012). Before we could even discuss my liver, the doctors asked … Continue reading

Posted in Crohn's Disease, General Disease, Liver Transplant, Primary Sclerosing Cholangitis, Uncategorized | 1 Comment