Category Archives: Liver Transplant

HEALTH UPDATE: Good For Now

I spent Wednesday down at the Miami Transplant Institute, where I had a very informative appointment. As always, it was a mix of the good, the bad and the “who knows.” Oh, and a possible “light at the end of my present … Continue reading

Posted in Crohn's Disease, General Disease, Liver Transplant, Primary Sclerosing Cholangitis, surgery | 2 Comments

How Are You?

“Please don’t ask me how I am/ I have to lie and say I’m fine.” — The Fastbacks I couldn’t tell what was causing me more discomfort: the urinary catheter, the nasogastric tube or the numerous IVs dangling from my … Continue reading

Posted in Crohn's Disease, General Disease, Liver Transplant, surgery | Leave a comment

This Ain’t A Contest

Depending on how charitable I’m feeling, I’m filing this under either “Misplaced Empathy” or “Really Bad Attempts at One-Upping.” The same person who in the past has sent me emails, ostensibly concerned about my health but always managing to talk … Continue reading

Posted in Crohn's Disease, General Disease, Liver Transplant, Primary Sclerosing Cholangitis, surgery | Leave a comment

Meeting of the Minds

So I’ve got an appointment this Wednesday to see the liver transplant team at Jackson. If you read my surgery story, you’ll recall that it was one of the team’s fellows who told me not to worry about pain management … Continue reading

Posted in Crohn's Disease, General Disease, Liver Transplant, surgery | 1 Comment

Dear Colon…

On Monday, June 24, I’m scheduled to have my entire colon removed. While the official reason is because pre-cancerous growths were discovered (complications of Crohn’s disease), and any potential for cancer can affect my placement on the liver transplant list … Continue reading

Posted in Crohn's Disease, General Disease, Liver Transplant | Tagged , | 3 Comments

I’m Back… Where Are You?

OK, so I’ve decided I’m going to really make this blog happen, and I’m gonna start posting more often, starting with a few articles I’ve written lately relating to my most un-excellent medical adventures. I realize for now I’m pretty … Continue reading

Posted in Crohn's Disease, General Disease, Liver Transplant, Primary Sclerosing Cholangitis | Leave a comment

Lots of Words

In December 2012, New Times Broward-Palm Beach published an article I wrote about my situation vis-à-vis being a performer. Originally, the story was going to be a 4,000-word feature, but stuff happened and I ended up rewriting it entirely. Here’s … Continue reading

Posted in Crohn's Disease, General Disease, Liver Transplant, Music, Primary Sclerosing Cholangitis, Uncategorized | Leave a comment